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Development and validation of the Iranian Minimum Data Set for Epidermolysis Bullosa: A mixed method approach

Somayeh Paydar; Shahrbanoo Pahlevanynejad; Farkhondeh Asadi dkk.

PLOS ONE, Vol. 20 No. 1 · 2025 · Inggris · PLOS Scopus

Minimum Data Set (MDS) enables integration in data collection, uniform data reporting, and data exchange across clinical and research information systems. The current study was conducted to determine a comprehensive national MDS for the Epidermolysis Bullosa (EB) information management system in…