14 hasil untuk "Emma Carduff"
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Artikel Jurnal
The impact of poverty and deprivation at the end of life: a critical review
This critical review interrogates what we know about how poverty and deprivation impact people at the end of life and what more we need to uncover. While we know that people in economically resource-rich countries who experience poverty and deprivation over the life course are likely to die…
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Artikel Jurnal Teks lengkap
Dying Behind Bars: A Capability Approach to End-of-Life Care in UK Prisons
Background: With a rapidly ageing prison population in the United Kingdom (UK), an increasing number of people in prison are dying from chronic and life-limiting illnesses. Methods: A sample of 487 independent investigation reports into deaths from natural causes in UK prisons (2017–2020) was…
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Artikel Jurnal
Dying in the margins: Experiences of dying at home for people living with financial hardship and deprivation
Home dying is a policy indicator of ‘quality dying’ in many high-income countries, but there is evidence that people living in areas of higher deprivation have a reduced likelihood of dying at home. However, there is limited research which centres the views and experiences of people living with…
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Artikel Jurnal
The end of life experiences of people living with socio-economic deprivation in the developed world: an integrative review
Abstract Background Those experiencing socioeconomic deprivation have poorer quality of health throughout their life course which can result in poorer quality of death – with decreased access to palliative care services, greater use of acute care, and reduced access to preferred place of care…
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Artikel Jurnal
‘Playlist for Life’ at the end of life: a mixed-methods feasibility study of a personalised music listening intervention in the hospice setting
Abstract Background Playlist for Life is a brief, inexpensive music listening intervention which originated in dementia care, but is increasingly being used for people at the end of life. However, there is a lack of robust empirical research on its application in the hospice setting. Our patient…
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Artikel Jurnal
What does ‘complex’ mean in palliative care? Triangulating qualitative findings from 3 settings
Abstract Background Complex need for patients with a terminal illness distinguishes those who would benefit from specialist palliative care from those who could be cared for by non-specialists. However, the nature of this complexity is not well defined or understood. This study describes how health…
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Artikel Jurnal Teks lengkap
Risk factors for complicated grief among family members bereaved in intensive care unit settings: A systematic review
Background: Families of intensive care unit (ICU) decedents are at increased risk of experiencing complicated grief. However, factors associated with complicated grief in ICU and bereavement needs assessment are not available routinely. We aimed to conduct a systematic review identifying risk…
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Artikel Jurnal
Palliative and end-of-life care research in Scotland 2006–2015: a systematic scoping review
Abstract Background The Scottish Government set out its 5-year vision to improve palliative care in its Strategic Framework for Action 2016–2021. This includes a commitment to strengthening research and evidence based knowledge exchange across Scotland. A comprehensive scoping review of Scottish…
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Artikel Jurnal
What makes palliative care needs “complex”? A multisite sequential explanatory mixed methods study of patients referred for specialist palliative care
Abstract Background Specialist palliative care (SPC) providers tend to use the term ‘complex’ to refer to the needs of patients who require SPC. However, little is known about complex needs on first referral to a SPC service. We examined which needs are present and sought the perspectives of…
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Artikel Jurnal
Advance care planning in amyotrophic lateral sclerosis (ALS): study protocol for a qualitative longitudinal study with persons with ALS and their family carers
Introduction Amyotrophic lateral sclerosis (ALS) is an incurable motor neuron degenerative disease that has rapid progression and is associated with cognitive impairment. For people with ALS (pALS) and their family carers, advance care planning (ACP) is beneficial, as it can lead to feelings of…
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Artikel Jurnal
Examining constipation assessment and management of patients with advanced cancer receiving specialist palliative care: a multi-site retrospective case note review of clinical practice
Abstract Background Constipation is a common symptom for patients receiving palliative care. Whilst international clinical guidelines are available on the clinical management of constipation for people with advanced cancer receiving specialist palliative care (SPC), the extent to which the…
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Artikel Jurnal
‘It was brutal. It still is’: a qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys
Background: The COVID-19 pandemic has been a devastating, mass bereavement event characterised by high levels of disruption to end-of-life, grieving and coping processes. Quantitative evidence is emerging on the effects of the pandemic on grief outcomes, but rich qualitative evidence on the lived…