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Palliative Care and Social Practice
Scopus
ISSN 2632-3524 · SAGE Publishing · 491 artikel di indeks
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Artikel Jurnal
“It’s hot potato, nobody wants these people”: Palliative and end-of-life experiences among people with opioid use disorder and life-limiting illness
Background People with opioid use disorder (OUD) experience disproportionate premature mortality compared to the general population, yet receive less palliative care. End-of-life experiences of people with OUD and life-limiting illness, and of healthcare providers caring for these individuals…
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Managing continuing professional development palliative care education as a social enterprise: Balancing mission, margin and impact
Palliative care continuing professional development (CPD) is often delivered within constrained funding environments, prompting interest in social enterprise models – mission-led approaches that use revenue-generating activities and partnerships to sustain and reinvest to advance a social…
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Artikel Jurnal
Perspectives of municipalities on people living with incurable illness, palliative care and the end of life: A case study research
Background Increasing attention is being paid to community-based approaches to living with incurable illness, caregiving, dying, death, and bereavement. However, the role of local authorities and welfare organisations in addressing these themes remains unclear. Objectives This study aims to explore…
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Enhancing oncology nursing capacity in Cameroon: A mixed-methods evaluation of a palliative and psychosocial care training program
Background Nurses in Cameroon and other low-resource settings receive limited structured training in palliative and psychosocial oncology care, despite a substantial and growing burden of cancer-related physical and psychosocial distress. Objectives To develop, implement, and evaluate a training…
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Artikel Jurnal
Cultivating death literacy and compassionate communities via ‘The Omega course’: A mixed methods exploration
Background The public health approach to palliative care argues developing death literacy and compassionate communities are key in meeting the increasing demand for palliative care. One potential means of building such skills is The Omega Course, a group educational intervention for healthy…
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Talking about the hypothetical future: Serious illness communication for residents living with dementia in long-term care homes - An integrative review
Background In long-term care (LTC) homes, residents living with dementia frequently experience serious illness communication that is crisis-initiated and oriented to institutional documentation (e.g., transfer and resuscitation orders), rather than iterative, values-based discussions aligned with a…
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Artikel Jurnal
Youth awareness on death and dying in school settings: A scoping review on knowledge and practices
Background School is a key setting for a child’s cognitive, social, and civic development and may therefore offer a promising space to open dialogue about death and dying. Yet awareness-raising practices on death and dying in schools can be difficult to identify within the abundance of scientific…
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Research priority setting for unpaid carers of older adults, patients with palliative care needs and at the end of life in Australia
Background Carers are individuals who provide unpaid care to family members and friends with disabilities, medical conditions, mental illness, or who are frail and aged. The contribution of carers to the Australian health, aged care, disability, and social care systems is significant. However, they…
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Strategies used by organizations to scale deep: Lessons from a volunteer navigation intervention
Background We know little about how non-profit organizations create the conditions within their communities that support sustainable change – a process that has been referred to as scaling deep. In this paper we explore the implementation of a volunteer community-based navigation program, within 46…
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Nursing student’s experiences of taking part in a Death Café: A qualitative study
Aims: To explore students’ experiences of taking part in a Death Café and whether they consider the Death Café as being a useful educational tool. Background: Talking about death remains a taboo for both nursing professionals and students. Recognizing the importance of open dialogue, Death Cafés…
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Cost impact of in-patient specialist palliative care: A retrospective economic study of administrative end-of-life hospital costs across 7 years in Switzerland
Background: While healthcare costs continue to grow, an aging population along with rising chronic diseases are increasing demand for high-quality end-of-life care. Objective: Our objectives include calculating hospital cost sub-categories, such as laboratory, medication, nursing, physician, and…
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‘It’s given us the opportunity’: Patient and clinician experiences of serious illness conversations in the NHS acute setting – Results from a UK Qualitative Study
Background: Despite legal and ethical commitments to dignified end-of-life care, open communication with seriously ill patients remains inconsistent across the National Health Service (NHS). The Serious Illness Care Programme was implemented in two NHS hospital sites to improve communication and…
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What makes serious illness conversations acceptable? A mixed-methods study of patient and caregiver experiences in oncology and cardiology
Objectives This study aimed to identify how contextual, dispositional, and relational factors intersect to shape the participant experience of serious illness conversations (SICs) while exploring the nuances of appraisal across different clinical specialties. Methods A convergent parallel…
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Artikel Jurnal
Lived experiences and decision making among patients and caregivers choosing conservative kidney management: A qualitative study
Background: The rising prevalence of kidney failure is a global concern. Individuals with kidney failure experience increased symptom burden, reduced quality of life, and increased healthcare utilisation. Kidney supportive care (KSC), a palliative-aligned approach that emphasises comfort, dignity…
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Patient- and caregiver-reported outcome and experience measures for evaluating serious illness communication: An environmental scan
Background Serious illness communication (SIC) is central to person-centred care and is associated with improved patient and caregiver experiences, reduced suffering, and more goal-concordant care. Despite substantial investment in SIC training programs, there is limited evidence that these…
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Awareness and knowledge of palliative care in Tripoli, Lebanon: A cross-sectional study in a disadvantaged population
Background: Palliative care access remains limited in Lebanon, particularly outside the capital. Data on public palliative care knowledge and perceptions in general and among disadvantaged populations remain insufficient. Objective: This study aimed to assess palliative care awareness and knowledge…
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Artikel Jurnal
Living with Amyotrophic Lateral Sclerosis: Exploring what matters to patients and caregivers through their experiences
Background Amyotrophic Lateral Sclerosis (ALS) is a rare neurodegenerative disease the causes of which are not fully understood, that leads to early death. From the diagnosis, ALS significantly impacts the quality of life (QoL) for patients and their caregivers due to its unique characteristics…
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Investigating effect versus impact in a participatory action research project: Building end-of-life communication competence in residential care facilities for older people
Background Active involvement of residents, family members and staff in proactive end-of-life conversations remains uncommon in residential care facilities for older people, although these are common settings for the end-of-life. This study derives from a Participatory Action Research project with…
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Artikel Jurnal
Assessment of the use of the Edmonton Symptom Assessment Scale – Revised (ESAS-r) among hospitalised patients with limited life expectancy: A cross-sectional study
Background Palliative care aims to improve the quality of life for patients with advanced chronic diseases. Accurate symptom assessment, based on fully completed questionnaires, is essential for selecting appropriate treatments during the final stages, when patients experience severe distress…
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Artikel Jurnal
Bridging the gap: Understanding the needs of community health volunteers to enhance palliative care delivery
Background Community Health Volunteers (CHVs) serve as lay providers who deliver essential health services and bridge the gap between underserved populations and formal healthcare systems. In Uganda, these volunteers act as the primary point of contact and a vital intermediary between rural…