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Health Expectations
Scopus
ISSN 1369-7625 · Wiley · 2.016 artikel di indeks
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Artikel Jurnal
How Preferences and Reality on Where We Die Unfold: A Four‐Country Longitudinal Qualitative Study (EOLinPLACE)
ABSTRACT Context While there is a growing body of evidence on end‐of‐life (EOL) care preferences such as place of death, research remains limited in key areas. This includes gaps in understanding preferred and actual places of EOL care and death (dying places), potential shifts of preferences over…
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Artikel Jurnal
‘Working Together to Meet in the Middle’. A Qualitative Descriptive Study of Power Dynamics in Lived Experience and Family Engagement in Mental Health and Substance Use Health Research
ABSTRACT Background Engaging people with lived experience (PWLE) and family members (/F) in mental health and/or substance use health research is an increasingly common practice and has many benefits. However, challenges are also encountered; these challenges include the experience of unequal power…
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Artikel Jurnal
Barriers and Facilitators to Telehealth in Underserved Rural Communities: A Mixed‐Methods Formative Evaluation
ABSTRACT Background Telehealth can mitigate healthcare access barriers that contribute to persistent rural health inequities. However, a limited understanding of telehealth barriers and preferences hinders the implementation of effective programs in rural communities. We conducted a formative…
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Artikel Jurnal
“Everyone's Responsibility and No‐One's Responsibility”: A Thematic Analysis of a Roundtable on the Complex Problem of Secondary Stroke Prevention in Australia
ABSTRACT Background Around one in four people with stroke will have a recurrent stroke. The risk can be reduced through medication and lifestyle changes, but many have poor risk factor control post‐stroke. There is no nationally recognised model of care for stroke secondary prevention, and…
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Artikel Jurnal
Meta‐Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis
ABSTRACT Background Partnering with people with lived experience of the mental health or substance use spectrum and caregivers is a growing priority in research. There is an emerging meta‐research literature on the science of engagement, but this has not been synthesised. Objective This scoping…
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Artikel Jurnal
What Drives Public Preference for Rare Drugs Coverage in China? Insights From a Multi‐Center Discrete Choice Experiment
ABSTRACT Introduction Reimbursement decisions for orphan drugs are complex, as conventional cost‐effectiveness frameworks may not fully capture broader societal values. To investigate public preferences regarding the inclusion of rare disease drugs in China's Basic Medical Insurance (BMI) using a…
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Artikel Jurnal
‘I Didn't Even Associate the Two Together at All’: A Qualitative Study of ‘Information Work’ Undertaken by Parents and Their Children With Epilepsy to Make Sense of Sleep and Seizures
ABSTRACT Background Epilepsy in children presents challenges for families who must navigate the condition itself, along with complex medical information and the emotional realities of daily care. Underpinning a recent randomised control trial (CASTLE Sleep‐E) was the acknowledgement that sleep was…
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Artikel Jurnal
Development, Co‐Design and Pilot Testing of Resources to Support Informed Decision‐Making for Lung Cancer Screening in Australia: A Study Engaging Diverse Communities and Expert Healthcare Professionals
ABSTRACT Introduction Australia's National Lung Cancer Screening (LCS) Program commenced in July 2025, targeting people at high risk of lung cancer based on age and smoking history. This study aimed to co‐design evidence‐based decision support tools to facilitate shared decision‐making (SDM) for…
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Artikel Jurnal
Engaging Teenage Grassroots Soccer Players in Sports‐Related Concussion Education
ABSTRACT Introduction Sports‐Related Concussion (SRC) presents potentially significant risks, particularly for teenage grassroots soccer players. Education is frequently proposed as a solution to address these risks; however, the effectiveness of educational interventions remains unproven…
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Artikel Jurnal
How Do We Achieve Impactful Patient and Public Involvement and Engagement in Statistical Methodology Research? A Qualitative Research Protocol
ABSTRACT Background Patient and public involvement and engagement (PPIE) is vital for good‐quality health research. However, PPIE is more commonly practised in some types of research than others. Statistical methodology research aims to improve the way we design studies and analyse data. It can be…
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Artikel Jurnal
‘From Superman to Barely Can:’ The Experience of Ageing for Australians With Spinal Cord Injury Sustained Below the Age of 65—A Qualitative Study
ABSTRACT Background Although ageing is universal, spinal cord injury (SCI) intensifies age‐related physical, psychosocial, cognitive, and functional challenges, with greater consequences for independence and quality of life. Improved life expectancy exposes limitations in prevailing ‘ageing well’…
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Artikel Jurnal
A Dialogic Participatory Model Between Professionals and Patients for the Co‐Creation of Transitioning Care Management Programmes in Rare Bone Diseases
ABSTRACT Introduction Rare diseases are a group of heterogeneous conditions affecting fewer than 5 per 10,000 individuals in Europe, with rare bone diseases representing a clinically significant subgroup. Multiple osteochondromas, Ollier disease and Maffucci syndrome are multifocal benign rare…
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Artikel Jurnal
The Many Faces of Engagement: A Scoping Review of Paediatric Patient and Family Engagement in Clinical Care, Education and Research
ABSTRACT Background Engagement of paediatric patients, families and caregivers in clinical care, health research and health education is increasingly recognised as essential to improving the quality, relevance and equity of health services. Despite growing interest in its application across…
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Artikel Jurnal
Co‐Designing Culturally Tailored Bowel, Cervical and Breast Cancer Screening Interventions With Migrant Communities: Towards Closing the Migration‐Related Cancer‐Equity Gap in New South Wales, Australia
ABSTRACT Background Migrants in Australia experience persistent cancer‐equity gaps, with later‐stage diagnoses linked to low screening participation. This study aimed to co‐design cancer screening interventions with migrant and refugee communities to promote equitable participation and reduce…
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Artikel Jurnal
Public‐Facing Short Videos on Paediatric General Anaesthesia and Child Neurodevelopment: Quality, Misinformation and Implications for Parent‐Centred Risk Communication
ABSTRACT Background Caregivers may encounter short videos about paediatric general anaesthesia and neurodevelopment before consultation. We assessed their quality, reliability, usability and misinformation patterns, and considered the implications for parent‐centred risk communication. Methods On…
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Artikel Jurnal
Further Development and Validation of a Measure of Compassionate Healthcare in Action
ABSTRACT Background Compassionate Healthcare In Action (CHIA) is a new questionnaire to measure patient experiences of compassionate care, with a particular focus on observable behaviours. It has been designed to address gaps in currently available metrics. It is generalisable across healthcare…
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Artikel Jurnal
Cognitive Reablement Using Digital Voice Assistants for People Living With Dementia or Mild Cognitive Impairment: A Co‐Design Study
ABSTRACT Background Digital health technology has the potential to increase access to home‐based reablement programmes for people living with dementia (PLwD) or mild cognitive impairment (MCI) to support everyday living. Digital Voice Assistants (DVAs) offer a possible solution to overcome…
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Artikel Jurnal
Evaluating the Co‐Design and Implementation of a Multicomponent Intervention to Improve Communication in Aged Care: A Nested Process Evaluation Protocol
ABSTRACT Background Experience‐based co‐design (EBCD) seeks to bring together people with lived experience of healthcare with other interest holders to collaboratively generate creative solutions. Objective A cluster randomised controlled trial is planned to assess the feasibility, acceptability…
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Artikel Jurnal
Better Healthcare Together: Co‐Designing a Framework for Health Service Co‐Design
ABSTRACT Introduction Co‐design in health services is increasingly recognised as essential for creating services and policies that address patient and community needs. However, genuine co‐design can be challenging, with existing toolkits often catering to professionals, reinforcing power imbalances…
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