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Health and Quality of Life Outcomes
Scopus
ISSN 1477-7525 · BMC · 3,006 articles in the index
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Journal Article
Rethinking measurement of health outcomes in Long COVID: complexities, challenges and considerations
Abstract The reality of Long COVID emerged soon after the beginning of the COVID-19 pandemic. More than five years later, thousands of articles have been published with multiple case definitions, heterogenous populations, and numerous measurement instruments, yielding a massive amount of evidence…
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Journal Article
Validation of the Danish version of the Carer Experience Scale in family caregivers of people with dementia
Abstract Background The Carer Experience Scale (CES) measures the caring experience, focusing on caregiver-related quality of life (QoL) rather than health-related QoL. We aimed to validate the Danish language version of CES in family caregivers of people with dementia in Denmark by assessing CES…
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Journal Article
Development and Rasch calibration of the Breast Cancer Symptom Help-Seeking Capability Scale (BCSHC)
Abstract Background Delays in seeking care after noticing breast cancer-related symptoms are common and may impair outcomes and health-related quality of life. Existing patient-reported measures often emphasize symptom awareness or general help-seeking attitudes and do not capture capability across…
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Journal Article
Sibling psychopathology as a mediator between disability in youth with chronic physical illness and sibling Health-Related quality of life
Abstract Background Chronic physical illnesses (CPIs) can cause significant functional limitations, impacting not only affected youth, but also their siblings. Siblings of youth with chronic physical illness (YwCPI) may experience higher levels psychopathology and poorer health-related quality of…
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Journal Article
Examining the face validity of the EQ-HWB-9 in dementia: caregiver interpretation across “Today” and “7-Day” recall periods
Abstract Background This study aimed to assess the face validity of the EQ Health and Wellbeing 9 (EQ-HWB-9) for use as a proxy by informal caregivers of community-dwelling people living with dementia (PlwD). It explored how caregivers understand and interpret the EQ-HWB-9 items when using two…
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Journal Article
Structural equation modeling of multidimensional determinants of postoperative quality of life in patients with oral cancer
Abstract Background Postoperative quality of life (QoL) in oral cancer patients is not only influenced by physical impairments but also by interrelated psychosocial factors. However, few studies have investigated these multidimensional pathways during the acute recovery phase. This study aimed to…
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Journal Article
Health utility values associated with vision impairment among the elderly in Hong Kong: a community-based study using EQ-5D-5 L and time trade-off
Abstract Background To estimate health utility decrements associated with correctable and uncorrectable vision impairment (VI) in community-dwelling older adults in Hong Kong using the EQ-5D-5 L and time trade-off (TTO), and to compare the sensitivity of these utility instruments in detecting VI's…
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Journal Article
Structured, expert-informed selection and harmonization of patient-reported outcome measures (PROMs) in a German multicenter network: the post-COVID syndrome use case
Abstract Background Patient-reported outcome measures (PROMs) provide subjective information on symptoms, functional ability or quality of life. In post-COVID syndrome (PCS), lacking clear diagnostic criteria or biomarkers, PROMs enable a differentiated assessment of disease course and treatment…
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Journal Article
Content validity of the modified EQ-HWB-9 in a sample of Argentinean patients, informal caregivers, and members of the general public
Abstract Background In response to the challenge of measuring the impact of health, social care, and informal caregiving on quality of life, the EuroQol Group developed the Experimental EuroQol Health and Wellbeing (EQ-HWB-9). Evidence from preliminary testing informed a series of revisions to…
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Journal Article
Measuring children’s HRQoL via self-reports and parent proxy-reports in the French Enabee 2022 study: an evaluation of the psychometric properties of both versions of the French KINDL-R questionnaire
Abstract Introduction Child well-being policies require quality data that takes children’s perspectives into account, recorded through appropriate, accurate and reliable measurement instruments. This study evaluated the psychometric properties of two versions of the KINDL-R questionnaire used in…
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Journal Article
A pre-illness reference reminder alters cross-sectional patient-reported outcome responses: evidence from EQ-5D-5L and EQ-HWB-9
Abstract Objectives This study aimed to evaluate whether a brief pre-survey reminder prompting patients to reflect on their pre-illness health was associated with altered response patterns in cross-sectional patient-reported outcome measures (PROMs). Methods A cross-sectional study was conducted…
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Journal Article
Changes in health-related quality of life: a longitudinal registry study among over 15,000 participants of a digital education and exercise therapy for knee and hip osteoarthritis using EQ-5D-5L
Abstract Objective To explore changes in health-related quality of life (HRQoL) measured using EQ-5D-5L among participants of a digital education and exercise therapy for knee and hip osteoarthritis (OA). Methods A descriptive longitudinal registry-based study among participants aged 40 + years…
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Journal Article
Comparative exploration of EQ-5D-5L bolt-on variants for fatigue, sleep, and vision in a general population sample
Abstract Objective Fatigue, sleep, and vision are among the most commonly used EQ-5D-5 L bolt-ons, with multiple alternative wordings. This study aimed to evaluate and compare the psychometric performance of the following bolt-on variants: (1) fatigue (FA) vs. tiredness (TI); (2) vision (VI) vs. VI…
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Journal Article
A multicenter longitudinal study on development and validation of the quality of life scale QLICD-DM (V2.0) for diabetes mellitus based on classical test theory and generalizability theory
Abstract Purpose Quality of life (QOL) research in diabetes has long been a concern with many specific instruments being developed, but no scale for diabetes has been developed based on the modular approach. This study aimed to develop and validate the Diabetes Mellitus Scale of the System of…
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Journal Article
A randomised equivalence study of the EQ-5D-5L Shona versions: evaluation of measurement equivalence between digital and paper formats
Abstract Introduction Routine assessment of health-related quality of life (HRQoL) of people living with HIV (PLHIV) is essential. We evaluated measurement equivalence between the digital and paper versions of the Shona EQ-5D-5L and examined known-groups validity. Methods and materials We conducted…
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Journal Article
Validation of the EQ-HWB-9 in a mental health sample and an investigation of modifications to items
Abstract Background The EQ Health and Wellbeing (EQ-HWB) is a new, generic instrument designed to evaluate quality-of-life across health, public health, and social care settings. The short form comprises nine items (EQ-HWB-9) and validation across diverse populations and contexts is required. We…
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Journal Article
Depression and psychiatric help-seeking as joint outcomes: a Bayesian multilevel analysis of household-level dependence
Abstract Background Depression and the utilization of psychiatric services (PSU) are complex mental health outcomes shaped by a wide range of individual, familial, and socioeconomic factors. However, within the context of Türkiye, limited attention has been devoted to the simultaneous modeling of…
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Journal Article
Relationship quality among people living with HIV/AIDS: a systematic review and meta-analysis
Abstract Background The aim of this systematic review and meta-analysis was to summarize the existing literature on the factors associated with relationship quality among people living with HIV (PLWH). Method A structured literature search was performed on APA PsycArticles, ProQuest and PubMed for…
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Journal Article
Clinical, social, and home-level factors associated with the quality of life of residents living with dementia in Canadian nursing homes: a cross-sectional, multi-province study
Abstract Background Quality of life (QoL) is a central priority in dementia care, yet most nursing homes (NHs) in Canada rely on clinical indicators that do not capture the emotional and social dimensions of residents’ well-being. Little is known about how clinical, social, and NH factors jointly…
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Journal Article
Measurement properties of patient-reported outcome measures for sexual health in the general population: a systematic review following the COSMIN 2.0 guidelines
Abstract Background Sexual health plays a crucial role in the overall health and quality of life of adults. Currently, various Patient-Reported Outcome Measures (PROMs) exist globally to assess sexual health from different dimensions. However, the quality of these measurement tools has not been…
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