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Jurnal

Journal of Participatory Medicine

Scopus

ISSN 2152-7202 · JMIR Publications · 126 artikel di indeks

  1. Artikel Jurnal

    A Call to Recognize the Integral Role of Physician Associates and Nurse Practitioners in Modern Health Care: Editorial

    Amy Price; Kathleen Price

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    AbstractPolicies governing health care professionals must be evidence-informed and include meaningful representation of all stakeholders, or commitments to quality and equity will remain shallow rhetoric. Physician associates (PAs), nurse practitioners (NPs), and patients deserve full participation…

  2. Artikel Jurnal

    Barriers and Facilitators of Digital Transformation in Health Care: Mixed Methods Study

    Marina Veldanova; Polina Glazkova; Elizaveta Krasilnikova dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    BackgroundDigital transformation is now a fundamental component of health care systems worldwide. To develop effective digital health strategies, it is essential to examine physicians’ perspectives on the barriers and facilitators of implementation, with particular attention to regional and…

  3. Artikel Jurnal

    Patients and Caregivers Leveraging AI to Improve Their Health Care Journey: Case Study and Lessons Learned

    Mary Beth Schoening; Dustin Cotliar

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    AbstractArtificial intelligence (AI) is increasingly integrated into everyday life. Yet in health care, patients and families are challenged to understand how AI may be helpful. As a result, real-world patient stories remain scarce. Generative AI can serve as a learning partner to help patients…

  4. Artikel Jurnal

    Patient Preferences for Technology-Assisted Patient-Reported Outcomes Measurement of Mental Health Symptoms Among Veterans: Cross-Sectional Survey

    Bella Etingen; Eric J Richardson; Stephanie L Shimada dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    BackgroundThe Veterans Health Administration is promoting patient-reported outcome measure (PROM) collection for measurement-based mental health care. Understanding veteran preferences about how and when to complete PROMs is critical to support their implementation. ObjectiveWe examined veteran…

  5. Artikel Jurnal

    Using Participatory Methods to Create Informational Videos for Inclusive Brain Stimulation Research Recruitment: Action Research Study and Pilot Randomized Controlled Trial

    Marlon L Wong; Lisa M McTeague; Chelsea A Miller dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundBlack and Hispanic/Latino communities experience disproportionate chronic pain and are underrepresented in pain research. Transcutaneous auricular vagus nerve stimulation (taVNS) and transcranial magnetic stimulation (TMS) are promising tools for pain management. Therefore, it is…

  6. Artikel Jurnal

    Vietnamese University Students’ Perceptions and Attitudes Toward Participation in Clinical Research: Mixed Methods Study

    Chi Le Phuong; Vy Pham-Tram; Hong Huynh Thuy Phuong dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    BackgroundRecruiting and retaining adequate numbers of eligible participants remain the key challenges in clinical research. Understanding the factors associated with participants’ motivations is essential to support recruitment efforts, reduce early withdrawals, and consolidate commitment. The…

  7. Artikel Jurnal

    “Tough Things You’re Going to Have to Go Through”: Dyadic Interview Study Including the Perspectives and Needs of Patients and Their Caregivers Post-Hematopoietic Cell Transplant

    Amanda Johnson; Eleanor Smeallie; Chloe Roslin dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundPatients undergoing hematopoietic cell transplant (HCT) and their caregivers are under a significant amount of stress throughout the HCT process with fear of disease recurrence, graft failure, and many other HCT-related complications. However, the needs and perspectives of…

  8. Artikel Jurnal

    Visualizing the Maternal Health Journey for Learning Health Systems: Mixed Methods Combined Experience Approach

    Amanda L Joseph; Bilikis Oladimeji; Helen Monkman dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundThe United States faces a persistent maternal mortality crisis, with rates far higher than those in other high-income nations. The mortality rate among Black women is more than 3 times that among White women. Traditional data visualizations, such as bar and line charts, often…

  9. Artikel Jurnal

    Peer-Led Emotional CPR Program in Black, Indigenous, and People of Color Communities: Convergent Mixed Methods Study

    Mbita Mbao; Karen L Fortuna

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundBlack, Indigenous, and people of color (BIPOC) experience disproportionately negative mental health outcomes, including rising suicide rates, and persistent barriers to culturally responsive care. Systemic racism, discrimination, and historical trauma contribute to mistrust of…

  10. Artikel Jurnal

    Developing a Culturally Tailored Narrative Video for Skin Cancer Prevention Among Spanish-Speaking Hispanic Outdoor Workers: Co-Design Study

    David Perez; Valeria Gómez; Dariana Sedeño-Delgado dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundHispanic individuals face a higher risk of skin cancer due to disproportionate occupational sun exposure; yet, culturally tailored resources for this demographic are scarce. ObjectiveThe aim of this study was to codevelop a culturally tailored narrative video to enhance skin…

  11. Artikel Jurnal

    Investigation of the Content Validity, Feasibility, Internal Consistency, and Construct Validity of 5 Patient-Reported Outcome Questions on Patient Involvement in Care Among Adolescents With Type 1 Diabetes: Multimethods Study

    Annesofie Lunde Jensen; Rikke Bjerre Lassen; Caroline Bruun Abild dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundValidated measurement tools that focus solely on assessing adolescents’ involvement in their treatment are scarce. ObjectiveThe study aimed to validate 5 patient-reported outcome (PRO) questions regarding patient involvement in care among adolescents with type 1 diabetes…

  12. Artikel Jurnal

    Evaluation of a Digital Intervention to Improve the Health Outcomes of Older Adults: Secondary Data Analysis

    Jowinn Chew; Georgina Bartlett; Lily Hopkins dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundThe health of aging populations is among the top challenges facing global health systems. The use of mobile health (mHealth) approaches has been found to be effective in prompting changes and has been identified as a potentially valuable tool to enhance health behaviors among…

  13. Artikel Jurnal

    Perspectives of Individuals With Obsessive-Compulsive Disorder on the Role of Artificial Intelligence in Therapy and Treatment: Thematic Qualitative Study

    Daniel Mokhtar; Harrison Wang; Emma C Garland dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundAI has become increasingly used in mental health care for applications such as diagnosis, monitoring, and treatment support. These include tools like clinician support systems, large language models, and conversational agents used to augment psychotherapy and clinical…

  14. Artikel Jurnal

    Inside or Outside? A Qualitative Comparative Study of 2 Recovery Colleges in Sweden and Norway

    Lina Al-Adili; Ragnhild Jensen Roaldseth; Henning Pettersen dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundRecovery colleges (RCs) provide users of mental health services with self-management and coping skills, along with actions to promote social inclusion and reduce stigma. Research shows that recovery principles in mental health have the potential to improve services, but are…

  15. Artikel Jurnal

    Understanding Recovery Colleges Through Partaker Narratives: Qualitative Diary-Interview Study

    Marloes M C van Wezel; Christien Muusse; Jenny Boumans dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundRecovery colleges (RCs) facilitate peer-supported learning communities where people experiencing mental disruption work on recovery. How recovery processes unfold, especially within RCs, remains insufficiently understood. ObjectiveUsing a narrative approach, this study…

  16. Artikel Jurnal

    The Architect of Trust: Dr Tom Ferguson’s Legacy

    Amy Price; Dave deBronkart

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    AbstractThis article serves as a formal tribute to the legacy of Dr Tom Ferguson and his foundational 2007 white paper on the “e-patient.” Despite its widespread influence, Dr Ferguson’s original vision has often been internalized by the broader medical community without clear historical…

  17. Artikel Jurnal

    Participatory Digital Twins for Chronic Care: From Predictive Models to Shared Sensemaking

    Qingrui Li; Bo Xie; Eric L Johnson dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    AbstractHealth digital twins, computational models that integrate longitudinal data, simulation, and forecasting, are increasingly proposed as tools for chronic care management. However, most current implementations are expert oriented, prioritizing technical optimization and clinical prediction…

  18. Artikel Jurnal

    Using Partner-Driven Maximum Variance Sampling to Form a Lived Experience Panel: Step-by-Step Tutorial

    Anna Jolliff; Teresa Thuemling; Jessica Arora dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    AbstractResearch projects conducted in collaboration with patients and caregivers are more rigorous, relevant, and impactful within the communities of focus. One mechanism for facilitating patient and caregiver engagement in research is through a lived experience panel (LEP)—an intentionally…

  19. Artikel Jurnal

    Experiences and Challenges of Patients With Chronic Respiratory Disease During a Virtual Research Study: Qualitative Study

    Noah Tregobov; Austin McMillan; Aditya Dhariwal dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundVirtual research has emerged as a promising and convenient approach. This study investigates the experiences and challenges faced by patients with chronic respiratory diseases who participated in a virtual research study. ObjectiveThis study aimed to explore the experiences of…

  20. Artikel Jurnal

    Patient and Family Perspectives on Generative AI Tools in Rare Diseases: Exploratory Mixed Methods Online Survey

    Charlotte Blease; James Jones; Catherine E Blease dkk.

    Journal of Participatory Medicine, Vol. 18 · 2026 · Inggris · DOAJ Scopus

    Abstract BackgroundGenerative artificial intelligence (GenAI) tools are widely accessible to the public, who are engaging with them for a wide range of health care applications. Existing research has focused predominantly on clinician-facing adoption. Far less is known about how patients and family…