13 hasil untuk "Georgia Cook"
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Artikel Jurnal
‘No one's ever said anything about sleep’: A qualitative investigation into mothers' experiences of sleep in children with epilepsy
Abstract Introduction Sleep problems in children with epilepsy (CWE) are common. However, little is known about parental experiences and feelings about managing sleep in their CWE. To provide the most appropriate services' provision, it is essential that the lived experience of parents of this…
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Artikel Jurnal Teks lengkap
Parents’/caregivers’ fears and concerns about their child’s epilepsy: A scoping review
Background: Childhood epilepsy is a serious and common neurological condition and can have life-long consequences and its impact can pervade all aspects of family life. Whilst the medical management of seizures is important, much of the day-to-day home management of epilepsy is invisible to people…
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Artikel Jurnal
Development and Evaluation of the CASTLE Trial Online Sleep Intervention for Parents of Children with Epilepsy
Introduction: Many of the sleep problems experienced by children with epilepsy (CWE) have the same behavioural basis as common sleep problems seen in typically developing (TD) children. Behavioural sleep interventions (BSIs) are widely used to treat these sleep problems in TD children and are…
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Artikel Jurnal
A Qualitative Investigation Into What Parents Want From an Online Behavioural Sleep Intervention for Children With Epilepsy
Many of the same sleep problems seen in typically developing (TD) children are frequently experienced by children with epilepsy (CWE). Behavioural sleep interventions (BSIs) are commonly and successfully used to treat these sleep problems in TD children and in some neurodevelopmental disorder…
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Artikel Jurnal
The feasibility and acceptability of conducting a randomised controlled trial evaluating a healthcare professional-supported, self-management intervention for people suffering from fatigue after critical illness
Abstract Background Fatigue is a common problem that significantly affects intensive care unit (ICU) survivors’ physical, psychological, and social functioning. ICU survivors often experience a loss of self-worth and identity, struggle to return to their normal roles, and face ongoing challenges…
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Artikel Jurnal
Behavioural intervention to improve sleep in childhood epilepsy: the CASTLE RCT programme
Background Sleep problems are common in young people with epilepsy and neurodevelopmental disorders, impacting learning, behaviour and family function. Sleep disturbances can trigger seizures, which in turn disrupt sleep, creating a vicious cycle. Available behavioural interventions have been…
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Artikel Jurnal
‘I Didn't Even Associate the Two Together at All’: A Qualitative Study of ‘Information Work’ Undertaken by Parents and Their Children With Epilepsy to Make Sense of Sleep and Seizures
ABSTRACT Background Epilepsy in children presents challenges for families who must navigate the condition itself, along with complex medical information and the emotional realities of daily care. Underpinning a recent randomised control trial (CASTLE Sleep‐E) was the acknowledgement that sleep was…
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Artikel Jurnal
Randomised controlled trial of online behavioural sleep intervention for children with epilepsy
Abstract We evaluated the clinical and cost effectiveness of an online sleep intervention (COSI) for parents of children with epilepsy. We conducted a multicentre, parallel-group, unblinded, randomised controlled trial. We recruited children aged 4–12 years with epilepsy and sleep problems through…
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Artikel Jurnal
The impact of parent treatment preference and other factors on recruitment: lessons learned from a paediatric epilepsy randomised controlled trial
Abstract Background In paediatric epilepsy, the evidence of effectiveness of antiseizure treatment is inconclusive for some types of epilepsy. As with other paediatric clinical trials, researchers undertaking paediatric epilepsy clinical trials face a range of challenges that may compromise…
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Artikel Jurnal
Changing Agendas on Sleep, Treatment and Learning in Epilepsy (CASTLE) Sleep-E: a protocol for a randomised controlled trial comparing an online behavioural sleep intervention with standard care in children with Rolandic epilepsy
Introduction Sleep and epilepsy have an established bidirectional relationship yet only one randomised controlled clinical trial has assessed the effectiveness of behavioural sleep interventions for children with epilepsy. The intervention was successful, but was delivered via face-to-face…